Session Chair Profile
JD, MPH, LLM, Chief Regulatory Officer, Ciitizen
Biography
Deven McGraw is the Chief Regulatory Officer for Ciitizen. Prior to joining Ciitizen, she directed U.S. health privacy and security policy through her roles as Deputy Director for Health Information Privacy at the HHS Office for Civil Rights (the office that oversees HIPAA policy and enforcement) and Chief Privacy Officer (Acting) of the Office of the National Coordinator for Health IT. Deven also advised PCORNet (the Patient Centered Outcomes Research Network), as well as the federal All of Us Research Initiative, on HIPAA and patient-donated data research initiatives.
Session Abstract – PMWC 2019 Silicon Valley
Session Synopsis: US and EU patients have legal rights to their health information and patient data sharing is seen as key to transforming treatment and powering medical discoveries. Medicare incentivizes hospitals and physicians to share data with patients. But even with laws and financial incentives, patient data sharing is still too rare. This panel of representatives from healthcare organizations and patients will explore regulatory and other obstacles to patient data sharing and engage the audience in a discussion about how to overcome these obstacles.
