Speaker Profile
Chief Commons Officer, Sage Bionetworks
Biography
Previously, Wilbanks worked as a legislative aide to Congressman Fortney “Pete” Stark, served as the first assistant director at Harvard’s Berkman Center for Internet & Society, founded and led to acquisition the bioinformatics company Incellico, Inc., and was executive director of the Science Commons project at Creative Commons. In February 2013, in response to a We the People petition that was spearheaded by Wilbanks and signed by 65,000 people, the U.S. government announced a plan to open up taxpayer-funded research data and make it available for free. Wilbanks holds a B.A. in philosophy from Tulane University and also studied modern letters at the Sorbonne.
Session Abstract – PMWC 2018 Silicon Valley
Session Synopsis: To ensure cohort diversity and health disparities, participant engagement, and privacy and security have ethical, legal, and social implications. These need to be considered when building the protocol for the All of Us Research Program. This armchair chat will center around these aspects of the protocol development.
